The waking hours of our day-to-day lives, filled with work, school, social gatherings and chores, demand a lot of technology and sleep deprivation and attention. For those living with narcolepsy, getting good sleep and staying awake make those demands an even greater challenge. Excessive daytime sleepiness and chaotic dreaming shape the experience of this sleep disorder, as well as battling social perceptions of laziness and jokes in mainstream media portrayals of people falling asleep mid-sentence. The medical field still struggles to recognize and diagnose narcolepsy, meaning it can take years for people with the disorder to understand their symptoms.
What are we doing wrong?
Host Anita Rao talks with three people about the experiences navigating a narcolepsy diagnosis. Lauren Thomas is an invisible illness advocate, and Andre Royal Sr. Jordan, a high school student, also shares his story.
It can happen when I'm washing my hands, when I'm in the shower.
And people have no knowledge that you may be stuck in a nightmare. Andre Royal Sr. Being a stay-at-home dad, I mean, as much as I love that time, it wasn't really a welcoming experience.
Like, we didn't necessarily plan on it. And so therefore, it really forced us to kind of navigate some terms of our relationship. And you find yourself having to renegotiate and re-navigate those former relationships, your current relationship and just expectations people have and the expectations you have for yourself. eleep
5 Things to get Productive Sleep
So there's a lot of identity that gets lost. And there's a grieving that takes place, but you have to find a way to, you know — I don't want to say power through it, because usually, it's more than that. So finding a way to best improve your circumstance and still be considerate without putting yourself last is really important. When I was in third grade, we decided to get a separate room.
The Effects Of Sleep Deprivation On Children
And whenever I would fall asleep, my teacher would just send me technology and sleep deprivation that room where I could go take a nap, a small nap for a while, and then come back to the class refreshed. And I would usually be good for that day. But after sixth grade, I didn't want to do that anymore. Because it was kind of embarrassing. And then I just open the door and everyone just turns and looks at me.
Introduction
You know how that feeling where everyone just looks at you, just like: Hey, guys. So we changed. And I would start taking medicine that would help me stay up. That helped a lot.
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Absolutely with you it agree. It is good idea. I support you.
The absurd situation has turned out
You have hit the mark. Thought excellent, I support.